E.B. Awareness Week highlights rare skin disorder, local family share personal experiences
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What is EB?
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Spreading awareness for #EB on the streets of NYC 🦋 💖 Learning how to say Epidermolysis Bullosa could be the first step to fighting for a cure alongside us. | EB Research Partnership
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27K views · 642 reactions | Day two of EB Awareness week.. EB IS A VERY RARE GENETIC SKIN DISORDER THAT CAUSES SEVERE BLISTERING INSIDE AND OUTSIDE OF THE BODY IN RESPONSE TO MINOR INJURY, RUBBING OR FRICTION. EB AFFECTS 1 IN EVERY 20,000 BIRTHS, EB IS ALWAYS PAINFUL AND CAN LEAD TO EARLY DEATH, THERE IS NO CURE OR TREATEMENT AS OF TODAY. LETS CHANGE THAT ! #fyp #foryou #awareness #missingyou | MarkyStrong | Facebook
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