CROSBY TOWNSHIP, Ohio (WKRC) – A local man is putting his pedaling skills to work for a good cause. He’s biking for the rare disease epidermolysis bullosa, or EB. He is the great uncle to two young ...

Please provide your email address to receive an email when new articles are posted on . BPM31510T previously received orphan drug designation. Phase 2/ 3 trials are expected to commence in 2025. The ...

KANSAS CITY, Mo. — T-shirts are being made after thousands of people attended a parade for a boy with a rare genetic disorder. A 3-year-old boy, Tucker Langord, was born with a rare genetic disorder ...

Pearl Jam frontman Eddie Vedder is releasing a new documentary, “Matter of Time,” this summer on a project he and his wife Jill have been working on to find a cure for epidermolysis bullosa, a genetic ...

LOOKING AHEAD TO THIS SATURDAY, WE CAN ALL HELP RAISE AWARENESS FOR A RARE DISEASE. THE THIRD ANNUAL GREENSBORO PLUNGE FOR LEE IS HAPPENING AT THE GREENSBORO AQUATIC CENTER. AND THIS YEARLY EVENT ...

An Irish engineer who climbed Mount Kilimanjaro in honor of his late brother now plans to row the Irish Sea to raise awareness about the rare disease that he died of, epidermolysis bullosa (EB).

BOSTON--(BUSINESS WIRE)--BPGbio, Inc., a leading biology-first, AI-powered, clinical stage biopharma focused on mitochondrial biology and protein homeostasis, today announced that the U.S. Food and ...